As some of you may know recently I have really been suffering with some problems with my ears, feel like I am going deaf! :( Not been good. I have been on for the last month, antibiotics to also deal with a sinus infection. Both of these are connected, although I am near the end of the antibiotic course and I am still having issues with the ears. I am seeing the Doctor again on Thursday about the ear issue.
Back to the point of this blog…sort of…I suffer from something called Samter’s Triad. So I get nasal polyps which I have had surgery to remove more than once, most recently 2 years ago. I suffer from Asthma, which if I am honest hasn’t been the best over the last 6 months either. Usually it is fairly well controlled and I have no problems with it, not so recently, being a triad that means there are 3 things, and I have the third as well, however in someways it is the least bothersome of the 3. I suffer from anaphylaxis shock if I have any NSAIDs, (non-steriodal anti inflammatories), these are things like nurofen etc. The only time this proves a problem when I do something like break a limb etc as they are usually the best for joint pain etc. Otherwise I don’t have a problem with this particular symptom.
About 12 years ago when I had my last surgery in New Zealand the surgeon actually mentioned the salicylate link. Before then I had never heard of it at all. We got a book that was about allergy free diets and I followed the Salicylate free side of it for about 6 weeks. It was hard and restrictive but we did notice a difference. No problems with my asthma at all, no issues with my sinues etc. The most significant part that showed us that it was working was one day I had a crisp type snack which we thought was OK, and within minutes of eating it, I was sneezing and reacting in a severe way. We reread the ingredients and realised that it wasn’t actually permitted. We agreed that yes the diet worked, however it was very restrictive and too hard to do longterm. So just went back to ‘treating’ the symptoms as per usual.
Then just before the last surgery a couple of years ago Samter’s Triad was finally mentioned. I say finally mentioned as before I never knew what was wrong. It is such a relief when you find out what is wrong, even if you find that there isn’t much you can do, just having a name can be a big help. We started researching Samter’s back then, but there wasn’t really much information around and what was around got very complicated very quickly. Think bio-chemistry type stuff. Certainly beyond my knowledge. The Husband even found it confusing. So at that time we left it and just had the surgery and carried on as usual.
So are you all up-to-date yet. ;) So a month ago when I started on these anti-biotics, talked about the Samter’s etc with him and I decided I needed to do something again. So we did more research online again, and there seems to be more information about Samter’s itself and Salicylate free diets. There seems to be more options open to me about what to do. One of them is Aspirin Desensitation, which freaks me a little bit. Also something to do with Leukotrines. Both of these would still require a referral to an immunlogist, I think. So when I see the Doctor on Thursday about the ears will be asking to a referral to the right person…if they know who it is.
Now both of these options are probably going to require me to do a Salicylate Free Diet, so we decided that after the holiday I would start on this again. So it starts on Tuesday. I will be eating things in the Neglible and Low columns, which gives you an idea of how restrictive this diet is. Main fruit is bananas, and pears, peeled mind you. Herbs and spices are pretty much all gone! Tomatoes are all gone as well. Will probably be having the same thing for breakfast and lunch, and just varying dinner for the most part. Since I am at work Monday to Friday this should be OK, just the weekends will be harder. Will be pretty bland food wise as well…or very garlicky. Hopefully this will help my symptoms fullstop, and then when/if the referral comes through for the right person, I should be ready to start whatever they decide is the right action for me.
This is why my curry tonight was my last curry for awhile. Tomorrow my last supper is going to be Nachos.
Hopefully this will also have the bonus of doing something about my weight…lol